“Never mind, maybe next time” — The Need of Closing the Gap between the Arts and Disabilities

By Graziana Presicce

My dad has Parkinson’s disease. It’s one of those things which, unfortunately, just happens. As with any disability, new circumstances inevitably bring some adaptations and new routines in one’s everyday life: whether involving medicines, more frequent visits to the toilet, or the need of taking into account how tired the body may feel on particular days, making walking more challenging than usual.

Through my work, being fully immersed in the arts, there are numerous events to which I wish to bring my parents along. Yet, there are often times where the answer eventually turns into a “never mind, maybe next time”. Being a classical pianist myself, my love for classical music, attentive audiences and concert halls is granted. Yet, the expectation of a still, quiet audience often does not make these concerts an ideal environment for people affected by Parkinson’s. It is unpredictable how strong the uncontrolled movements or shaking may be on certain days or times of the day. It is also unpredictable who is going to sit next to you: there might be the occasional glance on you; and it’s an uncomfortable feeling. Stress certainly does not help towards the effects of Parkinson’s, and such events should certainly not be a reason for stress—quite the opposite! Anyone, regardless of one’s condition, should have the chance to fully enjoy music, without having to think twice whether “it’s OK or not” to attend. 

It’s thrilling to see initiatives from the arts in taking a step closer towards disabilities; for instance, through relaxed performances. If you are in Hull and surroundings, we are excited to be hosting Hull Chamber Music’s very first relaxed concert ‘A Musical Journey’ at the Ferens Art Gallery, Friday 21st February 2020 at 11am! Carers and under 18s are welcome to attend for free (Standard Ticket: £10). Anyone attending will be free to move around, without any need of sitting still and quiet. The performance will also be BSL interpreted, as BBC Music Magazine’s Instrumental Award winner violinist Fenella Humphreys, alongside international pianist Nicola Eimer, will guide the audience through a musical journey around the world. Babies and toddlers are also most welcome to the event.

To book, visit: https://www.hullboxoffice.com/event/hull-chamber-music-and-culture-tots-present-a-musical-journey-around-the-world/

It would be lovely to see you there — do spread the word!

One final note: we recently launched a Crowdfunding campaign to give away tickets to those who cannot otherwise afford them. Tickets are distributed through local charities, including Parkinson’s and Mind, among others. We would be incredibly grateful if you could chip in to let us reach our new target; if this is not possible for you, simply sharing the link below and encourage your friends to do so would be immensely helpful (we have only 8 days left to achieve this!):

https://www.crowdfunder.co.uk/hullchambermusic

We have been overwhelmed by people’s generosity so far. We hope to reach our new target and making chamber music more accessible to all.

Thank you for reading. Now let’s make the difference together! 


Graziana

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